Sammy Basso, progeria advocate, has died at 28
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OCTOBER 6, 2024
We generally don’t think of rare-disease advocacy as funny. But of the many qualities apparent to anyone who met Sammy Basso, a biologist and spokesperson for the progeria patient community, who died suddenly on Saturday at 28, perhaps the most disarming was his ability to find laughter in almost anything. One April Fool’s Day, he posted a video about his doctors putting him on a diet — an absurdity for someone whose genetic disorder prevented him from gaining weight.
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